Our little Bug got to see his cardiologist this morning. The one Cricket pretends to be 99.9% of the time they play doctor.
{Side note: he weighs between 27 and 29 pounds, depending which scale you plop him on, and he’s a whopping 33 inches long. At 15.5 months old. That’s our boy!}
His doc has given us the go ahead – assuming we’re comfortable with it, which we are – to try weaning him off his anti-arrhythmic medicine again {digoxin and propranolol, for the nerdy folk. Just kidding. I’m a detail person too}.
The doctors tried, unsuccessfully, to wean him when he was 9 months old. Within 2 weeks of being off the medication, we were trekking him back to the pediatric ER in Lansing, his little body in full-blown SVT once again.
So we’ve been stalling. Not wanting to put him (or, let’s be honest, ourselves) back in that position again until the risk of his SVT returning is considerably lower.
We pray that is now.
He’ll be fully weaned again in about 2 weeks, so we’re just trusting God that his little heart is healed and without “electrical issues”.
This will be a very telling time for our growing boy. Typically if babies have not outgrown SVT by the time they hit 12 months – or thereabouts – it is an indication that they will deal with it throughout their life. It could rear it’s annoying head at 4, at 7, at 21, or with a bout of the flu. Or simply, because it wants to. Often. Seldom. Never. No one really knows.
Oh, how I pray the words Supraventricular Tachycardia are only a part of his history…and not his future.
And so we wean…and wait…and pray.